Elara is a seasoned journalist and digital content creator with a passion for uncovering stories that matter.
In spite of all the proven progress of modern medicine, certain people are attracted to alternative or “holistic” cures and approaches. Many of these do no harm. As a cancer specialist noted in the past year, people receiving cancer treatment will frequently try meditation or vitamins too. When such a change is in addition to, and not instead of, scientifically-backed treatment, this is typically not a concern. If it reduces distress, it can help.
But the explosion of online health influencers poses challenges that authorities and oversight bodies in many countries have yet to grasp. An investigation into one such business providing membership and advice to pregnant mothers has exposed numerous cases of third-trimester fetal deaths or other severe injury involving mothers or birth attendants associated with it. While the company is based in North Carolina, its influence is global.
“Across whole populations, going through labour and birth without professional support is linked to higher levels of risk for mother and baby,” as stated by a professor of midwifery.
Giving birth without medical assistance, known as free birth, is permitted in countries including the UK and US. The potential dangers are not well understood due to a lack of reliable information. Childbirth can be a frightening experience, and high-quality care is not guaranteed. In England, a alarming recently published report found a large majority of maternity units to be unsafe or in need of improvement.
Concerns of medical systems and particular, persistent issues with maternity care are in many cases justified. Many of the women spoken to for the inquiry had in the past undergone distressing births.
But while distrust of institutions may be rooted in experience, it has also proved to be a breeding ground for other influencers looking for converts to their unconventional methods and DIY ethos. During the pandemic, a “wellness” industry supposedly focused on healthy living was implicated in disseminating lies about vaccines and feeding suspicion about official advice.
Worry is rising that such beliefs are gaining more widespread purchase. One presentation given at a cancer conference focused on misinformation, which it said had “significantly deteriorated in the past decade”. This investigation shows that behind the image of an rebellious community lies an operation that coaches women as social media influencers as well as birth attendants. The organization does not claim to be a qualified medical provider.
There is no going back to a time when doctors were assumed to know best. Vast quantities of scientific research are made available online and many people use these to positive effect. But there is also a need for protections from poor advice. It is well known that the automated systems used by tech companies reward more extreme content.
In the UK, necessary reforms to maternity services cannot come soon enough. They should include the choice of home birth and the provision of data to empower women in making decisions. Ministers and bodies such as the World Health Organization should also create strategies for the information ecosystem so that science-based healthcare is not compromised.
Elara is a seasoned journalist and digital content creator with a passion for uncovering stories that matter.